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NEUROCOGNITIVE & PSYCHOSOCIAL OUTCOME OF CHILDHOOD BRAIN TUMOR SURVIVORS

This multi- and transdisciplinary research project jointly led by the Vrije Universiteit Brussel (VUB) and the Université Libre de Bruxelles (ULB) from 01/10/2013 until 30/09/2017 aimed at optimizing the care trajectory and the management of learning difficulties and related environmental problems in childhood brain tumor survivors (CBTS), in order to allow these children to catch up with their peer group as early as possible after their medical treatment, to reintegrate school in optimal conditions, and to have a good quality of life. The project consisted of two interrelated parts which were carried out in parallel, with the following aims: (Part I – ULB) to make an inventory of learning difficulties and related environmental problems in CBTS, and to assess the factors which influence the implementation of a potential management package based on the existing practice for learning difficulties, and (Part II – VUB) to identify key events in the care trajectory following surgery for childhood brain tumor, and to qualitatively analyze how patients and parents experience care- related decisions, with special attention directed to the interactions between patients and parents, and care professionals.

The findings of this project were reported in two doctoral dissertations and several publications:

Part I (ULB): GENIN Sophie, Cognitive and behavioral outcomes of childhood brain tumor survivors: A longitudinal study, Faculty of Psychological and Educational Sciences, Université Libre de Bruxelles, 2019.

Part II (VUB): VANCLOOSTER Stephanie, School reintegration of childhood brain tumor survivors: A qualitative study as step towards policy recommendations, Faculty of Medicine and Pharmacy, Vrije Universiteit Brussel, 2018.

Project title (funded by the King Baudouin Foundation, 2013-2017):

Care and educational trajectories of childhood brain tumor survivors: inventory and exploration of possible management strategies.

PI'S

Philippe Paquier (VUB & ULB)

Anna Jansen (VUB)

Johan Bilsen (VUB)

Lieve Peremans (UA)

Patrick Van Bogaert (ULB).

C4N researchers 

Jutte Van Der Werff Ten Bosch (VUB)

Inge Gies (VUB)

Eva Cloet (VUB)

Reginald Deschepper (VUB)

Eric Sariban (ULB)

Danielle Balériaux (ULB)

Olivier De Witte (ULB)

Daniel Devriendt (ULB)

Paul Meijnders (UA)

Stephanie Vanclooster (VUB)

Sophie Genin (ULB)